Assembly Republican Conference Leader Dave Rible, the prime sponsor of a law that requires infants to be screened for lysosomal storage disorders, welcomed Governor Christie’s commitment to “Emma’s Law” and a proposal to increase screening funding by $1.6 million.
“There is nothing more devastating for parents to face than a child’s serious health problem,” Rible, R-Monmouth and Ocean, said. “Early detection is a key in treating many diseases and can save babies’ lives. I’m proud that Governor Christie signed this law and has proposed increased funding.”
Rible sponsored “Emma’s Law,” which was named after Emma Daniels, who has since passed, and requires infants to be screened for lysosomal storage disorders (LSDs) that would enable detection of diseases such as Krabbe, Pompe, Gaucher, Niemann-Pick and Fabry in newborns.
“Emma was a brave young girl who provided hope and courage to everyone,” Rible said. “This funding will give parents and newborns that are diagnosed with lysosomal storage disorders more than hope. It will hopefully give them the cure.” TLS.
Something else for the hospitals to charge for. I want to know what the ratio of kids with these illnesses is – 1 per 100, 1 per 1000, 1 per million? Is it worth the expense? Don’t forget, taxpayers will be covering the expense for all the people without insurance.
Comments are closed.